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Will You Be The One To Cure Sonia?

January 1, 2011 by Seshu | Editor & Publisher

This post has little to do with photography – tips or tutorials. It has everything to do about stepping up and helping a complete stranger because their life depends on it. And, yes, you … YOU … can do something about it … NOW!

A couple of days back I received the following letter from Shilpa Nanduri:

I am writing to you because a friend of mine, Sonia Rai, who is just 24 years old, was just diagnosed with Acute Myelogenous Leukemia (AML) and is in urgent need of a bone marrow transplant.

I am requesting you to please help spread the word about Sonia and her family's effort to save her life.

They are currently organizing many bone marrow drives over the next few weeks in several cities. Visit www.curesonia.org for more information. Please keep checking back, because more cities will be added.

“Team Sonia – Sonia’s brother Sumit Rai, family and friends are organizing drives today and in the next few weeks. Please take the time to help spread the word about the drives and join the National Marrow Donor Program registry if you have not already done so.”

From Sepia Mutiny:

“As you may be aware from our previous posts on the topic, the National Bone Marrow Registry (NMDP) is in dire need of more ethnic donors. South Asians, as well as any minority, and especially people of mixed ethnicity are needed. Sonia is currently receiving excellent care at Massachusetts General Hospital in Boston, but in order to survive beyond the next few months, she requires a bone marrow transplant. Most matches occur within ethnicity and increasing the number of South Asians registered as potential bone marrow donors will help Sonia as well as many others who are searching.”

Please direct people to www.curesonia.org to find out how they can help. They can help by attending a drive and thus registering with the National Bone Marrow Donor program and / or by hosting their own drives (which is much easier than you would think, all the necessary support will be provided).

All new registrants added to the national registry might help not only Sonia, but also many others searching for a bone marrow match.

So, as we start the New Year today, allow me to ask you: Will you be the one to step up and register? Will you be the one to save Sonia's life or for that matter anyone else's life?

As you embrace the New Year, I also ask that you embrace this cause. This isn't the first time I am asking you to do so. Back in 2007, I appealed to you to help my cousin Vinay Chakravarthy. His friends and family rallied to have more than 50,000 people register. Yet, we are still short on finding matches for people like Sonia.

If you are the type to make every day count, shouldn't you jump in an register yourself with the National Bone Marrow Program registry today? Please remember that people's lives depend on it. Maybe even yours.

Welcome to a day filled with one's. It's 1/1/11. A very Happy New Year to you all.

Filed Under: Call To Action, Desi, Personal, Volunteer

We’ve got something to SAY. So do Midival Punditz & Karsh Kale!

March 5, 2009 by Geeta

My mother gave kisses like satin and embraces like warm honey. Making Punjabi-style home-made yogurt every evening was a religious practice for her. I would hover, eye-level with the kitchen counter, and gawk in awe at her magical hands that never spilled a drop. With those same bare fingers, she would flip oily, gritty and hot parathas. One time in Randall’s (a chain grocery store in Texas), in the soda aisle, someone accidentally put an eggplant on top of a 24-pack of Pepsi. It looked so out of context, so unabashedly “eggplant” amongst rows of sodas, that it spurred giggle after giggle after giggle from my mother. (Of course, my mom didn’t see the eggplant but rather baigan bharta!)

Many called her Nancy, instead of her Indian name, Neroo.  She and I are inextricably linked through the times I skipped school to create ‘busy' tasks for her; through the times I bought her bunches of her favorite bananas and playfully called her a monkey, just to see her laugh; through the times I would stand in her hospital room and just hold her in my arms, oftentimes only letting go when she told me I was suffocating her. We are linked through the drops of coconut oil she rubbed into my hair as a child, and through the drops of coconut oil I rubbed into her hair as an adult.

Coming from India in the late 60’s, my mother found herself lost in America, in a country where she couldn’t find cumin seeds and where people didn’t sleep on rooftops during summer. The story is one which has been now immortalized in books, movies, our memories, and our childhood of mothers who always wore saris to birthday parties of our white or brown friends from school.

The rest of her story has yet to be documented, has yet to be said. In what’s proving not to be such a rarity anymore for Indian families in the U.S., my father’s sudden departure from the family when I was 8 triggered severe symptoms of depression in my mother. This, combined with a complicated, abusive and rather hateful relationship with her own family, eventually morphed into biploar disorder -manifesting itself through hysteria episodes, hospitalizations, screaming, fights, multi-car trains of non-logic, and numerous suicide attempts. 

Since my pre-teens, I provided care for my mother. I tried finding creative solutions, taking great joy in the small victories, tried every resource I had at my disposal. I knew she was battling something larger than her, but her condition was not recognized by members of her Indian family and close friends in the South Asian community. This pitted me in complete disagreement with my mother’s family. Mental illness carried a stigma, it was an “American” problem, it wasn’t a real condition.

My father was often held at blame, I was often held at blame for her condition, being told my nontraditional choices and lifestyle left my mother in an “extreme sadness.” What were my nontraditional choices? Choosing to leave Texas when I felt my mom could take care of herself, opting for travel in the world instead of staying in Texas, choosing colorful boyfriends over marriage. Their medium of blame was a simplistic and dismissive answer to a complicated issue. My mother’s mental illness fell silent to her traditional family, to the South Asian community and prey to the stigma – the problem did not exist, so how could the solutions?

In 2006, my mother’s hallucinatory break-down and months of hospitalization led to her sudden and unexpected passing. It didn’t have to get to that point.

In the summer of 2008, I realized I had something to SAY. I knew the residual pain and isolation from my mother’s loss to bipolar disorder was so profound that if I didn’t channel it towards positive means, it would destroy me. So, in July 2008, I started SAY Campaign, to recognize and legitimize the fight against mental illness within the South Asian diaspora community (Check this YouTube video as well). There are hundreds more individuals in the South Asian community in the U.S. like my mother who, due to the stigma and lack of recognition, do not receive proper care. I am hoping by saying my mother’s story, sharing my story as a caretaker, it will be a catalyst for others to say their story and begin to chip away at the stigma.

I have something to SAY and I know others do as well. Join us, and South Asian artists and supporters Midival Punditz and Karsh Kale, in the SAY Campaign. Please keep an eye (or ear) out for concerts showcasing SAY Campaign with Midival Punditz and Karsh Kale in Spring 2009. Feel free to contact me at: graj@saycampaign.com

Filed Under: Commentary, Culture, Desi, Non-Profit News, Volunteer Tagged With: mental illness, south asian, story

Scian Melt # 4

December 7, 2004 by Seshu | Editor & Publisher

It's finally here. With apologies again, allow me to launch into the four (so appropriate, eh?) entries I received for this fourth installment of The Scian Melt.

First up is a lament of sorts by Patrix on his fine blog Nerve Endings Firing Away. And are they ever! Patrix finds the Cobb County School System has succumbed to a form of idiocy; insisting that evolution, or the theory behind it is only that a theory and that creationism, based largely on a Judeo-Christian belief of the world really is the only answer.

Continuing in this vein of science versus religion is Sandeep‘s post coincidentally titled, The Science Vs Religion Battle. Sandeep suggests that the age of rationale, independent thought, especially on college campuses is in the crosshairs of the ultra conservative propagandists. Dare to discuss a controversial topic and you will be forever branded a rabblerouser and summarily ejected from the system.

On a lighter note, Prashant Mullick has a lucid explanation of how we perceive colors in the sky.

Lastly, continuing to keep our eye to the starry sky one blogger who goes by Broodingdood has some truly fantastic plans for India's odyssey to the moon. Arthur C. Clarke would be proud.

The next Melt will be hosted by Patrix on or around December 25.

Filed Under: Desi, Science, Weblogs

The Fourth Scian Melt: An Update

December 7, 2004 by Seshu | Editor & Publisher

It is with profuse apologies to all that I say the links for the fourth Scian Melt will be up on this site only tomorrow (Wednesday, December 8, 2004).

A combination of receiving a dearth of entries (thanks Thanksgiving!) and a slew of personal errands that simply couldn't be put off caused this delay.

Selva has asked me to mention that the next Scian Blog will be hosted by Patrix at or around December 25.

Filed Under: Desi, Science, Weblogs

Homeboy Makes Good

November 11, 2004 by Seshu | Editor & Publisher

harisreenivasan.jpg

That's friend and fellow SAJAer Hari Sreenivasan on the left.

Filed Under: Desi

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About Seshu

Seshu creates relaxed portraits of families and high school seniors in Avon, Connecticut. He also leads a successful headshot photography studio in Connecticut, helping professionals from a variety of disciplines project the very best versions of themselves. He created Tiffinbox as a way of inspiring photographers, to create better images and successful businesses. [Read More]

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